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Tuesday, September 10, 2013

National Chronic Invisible Illness Awareness Week


This week is National Chronic Invisible Illness Awareness Week. The theme this year is: “I choose to (fill in the blank).” I choose to let everyone know I have Fibromyalgia. I choose to not suffer in silence. I choose to help educate people about my illness. I choose to fight and not let Fibromyalgia run my life.

My Fibromyalgia consist of body wide muscle, joint and nerve pain. Some days I have little to manageable pain. I love those types of days. Those are the days I can enjoy my family, pull off a killer photo shoot or rip the runway and just enjoy life. Other days I can experience debilitating pain to the point where I cannot get out of bed.

Lately, I have been doing an extreme amount of research on Fibromyalgia and its symptoms. I came across www.fibroandfatigue.com and they listed every symptom I am experiencing. So I would like to share them with my readers.




  • Chronic muscle pain, muscle spasms or tightness
  • Moderate or severe fatigue and decreased energy
  • Reduced tolerance for exercise and muscle pain after exercise
  • Insomnia or waking up feeling just as tired as when you went to sleep
  • Stiffness upon waking or after staying in one position for too long
  • Difficulty remembering, concentrating, and performing simple mental tasks (“fibro fog”)
  • Tension or migraine headaches

  • Abdominal pain, bloating, nausea, and constipation alternating with diarrhea (irritable bowel syndrome)
  • Jaw and facial tenderness
  • Sensitivity to one or more of the following: odors, noise, bright lights, medications, certain foods, and cold
  • Feeling anxious or depressed
  • Numbness or tingling in the face, arms, hands, legs, or feet
  • Increase in urinary urgency or frequency (irritable bladder)
  • A feeling of swelling (without actual swelling) in the hands and feet

I have found lots of good advice on WebMD too. I have found coping techniques, support groups, and exercises that can help me strengthen by body. Here is a link that keep in my favorites, http://www.webmd.com/fibromyalgia/default.htm.

My life will not change because I have Fibromyalgia.  I will still write, rip the runway and be at as many events as I can. I will not let Fibromyalgia dictate my life, and no one else should. If you have any questions, feel free to reach out to me at smartcurves@thecurvypark.com.  

 

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